Posts in Parents
Episode 26 - Ehlers-Danlos Syndrome and a "Ray-a" Light in the Darkness with Raya Horcher

Today on the show I sit down with Rachel who goes by Raya Horcher. She is a mother of two, a certified holistic resilience coach, and advocate for the rare Elhers-Danlos Syndrome, and her mission is to walk with, educate and provide resources as people journey into and through their vulnerabilities and find their own light and joy to live a life that feels good. You can learn all about her and more at www.rayalife.life

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Episode 25 - Child Abuse Prevention with Lindsey Strickland of Worth the Conversation

Lindsey Strickland of Worth the Conversation joins us this month in observation of Child Abuse Awareness month. Lindsey spends her time with us sharing abuse prevention tools and strategies, the type of circumstances we should avoid and be aware of, and the types of questions we should be asking caretakers or organizations when placing our kids in their care.

Lindsey is an adopted mother to her child Ben who has Down Syndrome and raises her family in Washington.

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Episode 23 - Advocacy Using Your Body, Noonan Syndrome, and Virtual Community with Elisabeth Parker

Today on the podcast we are joined by mother and advocate, Elisabeth Parker. Elisabeth lives with her family in Portland as a Noonan Syndrome Advocate, she is a yoga instructor, and also the founder of @Move2Advocate that provides Rare Disease Mamas, Advocates and Friends with inspiration, accountability, and empowerment for self-care through all things movement.

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Episode 22 - Managing Expectations and Business as Advocacy with Ben, Laura, and Jonas Harrison of Jonas Paul Eyewear

Ben and Laura are the founders of Jonas Paul Eyewear and join us for a conversation about raising their son Jonas who was born blind, a result of a rare eye condition called Peters anomaly. We discuss life before and after diagnosis, how community changes with family changes, and they offer some advice if you’re thinking about starting an organization or a company in response to your child’s diagnosis. In addition, Jonas himself takes a moment to join us on the show and you don’t want to miss what he has to share with us!

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Episode 21 - Sharing Vulnerability with Guest Hosts Sinead Quinn and Melanie Dimmett

Host of the Finding Happy Podcast, Sinead Quinn and Author of Special, Melanie Dimmett, take over the show today for our Guest Hosted episode this month! They discuss the dynamics of grief, how vulnerability plays a part in the early stages of parenting, and how they continue to find motivation in their ongoing advocacy efforts.

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Episode 20 - Cerebral Palsy, Shopping Carts, and Pageantry with Nicole La Ha Zwiercan

We’re celebrating Cerebral Palsy Awareness Day this week on March 25th, and we’re so excited to share that occasion this week with Nicole La Ha Zwiercan. Nicole is Mrs. USA Universe 2018, a parent advocate to her daughter with Cerebral Palsy, blogger at Its Simple to Be Kind and more.

In this episode, Ileana De Sosa and Nicole share a conversation about life and mind transition once becoming a parent to a child with Cerebral Palsy, how they celebrate when grocery stores and parks provide proper equipment, and they discuss how every space needs efforts for inclusion and advocacy.

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