Today on the show we have Larkin O’Leary and Harmony Harvell from the Non Profit, Common Ground Society. They are both former educators and are both raising a child with a disability. We love the work these ladies are doing and we know you will too!
Read MoreGuest host Amanda Garzon, Chief Operations Officer of the Hydrocephalus Association, is joined by Eileen Rodger and Melenie Dailey, mothers of young-adult children living with hydrocephalus. Bringing twenty years of their shared experiences navigating the medical system with their medically complex children, Amanda, Eileen and Melenie share stories and lessons learned on advocating effectively with doctors and in the hospital setting.
Read MoreToday on the show I sit down with Rachel who goes by Raya Horcher. She is a mother of two, a certified holistic resilience coach, and advocate for the rare Elhers-Danlos Syndrome, and her mission is to walk with, educate and provide resources as people journey into and through their vulnerabilities and find their own light and joy to live a life that feels good. You can learn all about her and more at www.rayalife.life
Read MoreLindsey Strickland of Worth the Conversation joins us this month in observation of Child Abuse Awareness month. Lindsey spends her time with us sharing abuse prevention tools and strategies, the type of circumstances we should avoid and be aware of, and the types of questions we should be asking caretakers or organizations when placing our kids in their care.
Lindsey is an adopted mother to her child Ben who has Down Syndrome and raises her family in Washington.
Read MoreToday we have Breggett Rideau, who is a mom to her son Terrance, grammy nominated vocal Jazz artist, and pioneered legislation in Texas to add cameras to the classroom.
Read MoreToday on the podcast we are joined by mother and advocate, Elisabeth Parker. Elisabeth lives with her family in Portland as a Noonan Syndrome Advocate, she is a yoga instructor, and also the founder of @Move2Advocate that provides Rare Disease Mamas, Advocates and Friends with inspiration, accountability, and empowerment for self-care through all things movement.
Read MoreBen and Laura are the founders of Jonas Paul Eyewear and join us for a conversation about raising their son Jonas who was born blind, a result of a rare eye condition called Peters anomaly. We discuss life before and after diagnosis, how community changes with family changes, and they offer some advice if you’re thinking about starting an organization or a company in response to your child’s diagnosis. In addition, Jonas himself takes a moment to join us on the show and you don’t want to miss what he has to share with us!
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